Atlantic Ehlers-Danlos Syndrome Society

The Atlantic EDS Society is a peer support network based in Halifax, Nova Scotia. The primary goal is to bring together individuals and families in Atlantic Canada with the diagnosis of one of the Ehlers-Danlos Syndromes or Hypermobility Spectrum Disorders.  In addition to facilitating a monthly peer support group held at the IWK Health Centre, we also strive for advocacy and education by sharing resources and making important connections in the medical field.  Co-Founders Tanya Brown and Nicki Himmelman founded the society in January 2014 when they both realized the lack of resources that came from the diagnosis, and wanted to help others in Nova Scotia facing the same challenges.  To date, Atlantic Ehlers-Danlos Syndrome Society has over 70 members, and continues to grow monthly.  

The Atlantic EDS Society provides us with the necessary support required to better understand EDS and HSD. These conditions are not widely known about or researched. So with their knowledge, resources, and partnership,we have been able to custom tailor a program for clients living with one EDS/HSD and their co-existing diagnosis. K9PAD is now prepared to grow the EDS program and introduce an intake of Service Dogs in Training geared towards this program.  We have grown our team to include a couple of Registered Nurses to better facilitate the medical portion of our program. 

Through our partnership, K9PAD will be able to better assist the EDS/HSD community to becoming more independent both at home and in the community.

We are very excited for this partnership.

If you, a family member,or a friend is diagnosed of one of the Ehlers-Danlos Syndromes or Hypermobility Spectrum Disorders, please consider joining the Atlantic Ehlers-Danlos Syndrome Society. They host monthly peer support meetings in Halifax and have a wealth of resources. 

Supporting our EDS Service Dog program isn't just about donating. You can get involved with awareness and advocacy of those with EDS/HSD or any of it's co-existing diagnosis. Awareness of these conditions will empower those living with them and can encourage the medical community to research and learn more about these diagnoses.

You can donate straight to the K9PAD EDS program. As well, there are sponsorships available at all different levels.